WELCOME

Thank you for viewing my blog. This is simply a diary of me dealing with Crohn's disease starting from surgery.


Again Thanks and pass it on. We may never know who has Crohns Disease. They may not know they have Crohn's.















Thursday, February 3, 2011

Crohn's Disease

This is my first time talking about my bout with Crohn's disease. I was diagnosed with Crohn's about a year ago but I believe it started about 10 years ago. When I reflect back those years ago, I  would have stomach problems (pains, cramps) but would relate it to something that I ate. The pains were not consistent. I may experience pains for maybe a week and then would not have any for months. This went on for the next 6 or 7 years. Over the past 3 years, the pains started getting progressively worse to the point that my primary phyiscian sent me to a GI specialist for diagnose. After going through a colonoscopy, the GI specialist saw something in my small intestine but was confused as to what it was. He saw a ulcer but it was in an area of the small intestine where crohn's would be. They gave me a steroid that totally reacted adversely towards me so I had to stop taking it. My primary doctor then sent me to another GI. She had an MRI done on me stomach and told me you have crohn's. We had to treat the ulcer first. During the time of treating the ulcer, the doctor told me what my options were for treating crohns. All the medicines that are used to treat crohns lowers your immune system. I did not want to take steroids and so I subjected myself to dealing with the pain without getting treatment for about 8 months after being diagnosed. I finally could no longer deal with the pain and so I went back to my second GI and we started reviewing options for treatment. Because I had waited, the crohns had spread in my small intestine and some of my colon. My GI recommended that Remicade was the best option for treatment. Surgery would be necessary if the Remicade did not seem to work. Remicade helps to control crohns but does not heal scarred tissue. As it turns out, I have scarred tissue in my small intestine.
So my first Remicade treatment was on November 24, 2010. I still had pains and I was told that it's different for everyone as far as responding to the medication. My next treatment was on December 9, 2010. I started feeling less stomach pains but it was inconsistent. Some days were good and some were bad. What I did notice is that I started having alot of gas or acid reflux. So less stomach pains and more gas pains. The gas in my stomach became loud and painful. After my third treatment of Remicade on January 7, I had no stomach pains and felt great. Then I ate some food and the gas pain was unbearable. When I described it to my wife, she likened it to having contractions in pregnancy. Now I don't about that but it was painful. The pain would be on a cycle. It got to a point that no medication would help with the gas.
 I've been in the hospital now for a week and half because I cannot take in anything orally. So now here I am in the hospital waiting for surgery to remove about a foot of my small intestine. My surgery was scheduled for this morning but now it has been pushed back to this afternoon. I have been on a liquid diet for over two weeks now. I can't wait to eat.

I will get back with you after surgery. Wish me luck.

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